Cruisin for a Snoozin!

If you follow us on any form of social media I’m sure you’ve seen our most recent miracle… SLEEP! Westynn, and most kiddos with her CTNNB1 diagnosis, struggle with sleeping through the night. Which in turn means the entire family struggles as […]

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You’ve heard the saying “One in a million”…

Well we just discovered our girl is one in FIFTY MILLION. Yep, you read that right. 1 in 50,200,000. There are approximately 150 in the whole world who have a variant of CTNNB1 Syndrome. Just like Westynn. CTNNB1 Syndrome is a deletion, […]

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